Join us for our Virtual Meet-Up, a supportive and welcoming space where young tongue cancer patients can come together to share experiences, exchange insights, and connect with others who understand their journey.
Whether you’re seeking advice, looking to offer support, or just want to listen and learn, this meet-up is for you. If you feel hesitant about speaking, no worries—our chat feature allows you to participate in a way that feels comfortable, and our hosts will gladly voice your contributions.We look forward to seeing you there!
We’re holding in-person meet-ups in the USA and UK with more locations to be added! These gatherings are a fantastic opportunity for young tongue cancer patients to connect with others locally, share experiences, exchange insights, and find support from those who truly understand your journey.
The Young Tongues Podcast, hosted by our CEO & Founder Barbara and her co-host Jamie, is a candid and insightful series designed to explore the realities of living with tongue cancer. Now in its second season, the podcast dives into a wide range of topics, ensuring no subject is off-limits.
The podcast is available on Spotify, Apple and YouTube
Our Young Tongues Patient Support Group is a dedicated space for individuals aged 18 to 64 who have been affected by tongue cancer. We understand that living with or recovering from tongue cancer presents unique challenges, and our group is here to provide a safe, supportive, and understanding environment for anyone navigating this journey.
The Young Tongues Lifers Support Group is a dedicated space for individuals who have been told their tongue cancer diagnosis is no longer curable. This group has been created to provide comfort, connection, and understanding for those navigating this deeply personal and challenging reality.
The Young Tongues Supporters Group is a dedicated space for those who are caring for someone aged 18-64 living with tongue cancer. We understand that being a caregiver comes with its own set of challenges, emotions, and responsibilities, and this group is here to provide the support you need as you care for your loved one.
Be Kind
Even though we have the same diagnosis, our experience is unique. We encourage you to share your experiences, but frame suggestions as personal perspectives rather than directives. For instance, use phrases like 'This worked for me,' instead of 'You must' or 'Do this.'
No Cancer Comparison Game
We ask everyone to avoid comparing cancer experiences, whether it’s minimising someone else’s challenges or downplaying your own. Instead, let’s focus on acknowledging our shared journey and validating each other’s emotions.
Don't be a Doctor
While sharing personal experiences is welcome, offering medical advice is discouraged, as it can unintentionally lead to harm. Always remind peers to consult their medical team before trying something new.
There is no pressure
Your presence is welcome here—whether you're an active participant or prefer to observe quietly. Engage in whatever way feels best for you, and know that your boundaries are respected.
You are allowed to leave
It's okay to leave or take a break whenever you need to prioritize other areas of your life. If you'd like to stay connected, follow our public social pages or sign up for our mailing list at www.youngtonguesglobal.com.
Safe Space
No question is silly, and every emotion is valid. Please respect the privacy and feelings of your peers, and avoid sharing or tagging information without their explicit consent.
Tongue Cancer Education
By participating in this group, you consent to your posts and comments potentially being used anonymously for educational and awareness-raising content. Personal photos, videos, or identifiable stories will never be shared without your explicit permission.
Fundraising and Selling
To maintain a focused and supportive space, we only allow fundraising efforts that directly benefit The Young Tongues charity. Personal fundraising campaigns or posts promoting or selling commercial products are not permitted. This ensures our community remains centered on our shared mission. Thank you for your understanding!
Research
If you are approached to share a research initiative within our group, please contact our CEO, Barbara, at [email protected] first. We have specific protocols in place, and all research opportunities must be reviewed and approved before being shared through the official Young Tongues admin account.
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